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Part
I: Caring Decisions
1.
When Someone You Love Goes into Care:
Becoming a Caregiver; Becoming the "Family Member" of Someone in Care
Alastair
2.
Deciding About Care
How to Talk About Care; Choosing the Right Time; Stress; When a Parent Chooses
to Live at Risk; Your Legal Right to Make Decisions for
Your Relative;: A Warning; Advance Directives and Medical Decisions
Lydia
Jean
3.
Family Decision Making
Family Relationships and Care decisions; How to Make Family Decisions; Keep Your
Relative Involved
Mary
4.
Guilt, Loss, and Grief
What is Guilt; Conflicts that Give Rise to Guilt; Families and Guilt. Not All
Relationships were Ideal; ; Guilt and Dementia; Dealing with Guilt; Letting Go;
Grief and Loss; Handling Grief
Marjorie
Part
II: The Nursing Home
5.
About Nursing Homes
Where to Start Finding a Nursing Home; Keeping Your Relative at Home; Types and
Levels of Care; Applying for Care; About Good Care and Good Caring; On Abuse;
Specialized Dementia Care Units; Costs; Nursing Homes and Legal Responsibility
Mildred
6.
Visiting the Home
Staffing;
Programming; Policies; Dining; Physical Plan; Surveys and Accreditation
John
and Joyce
7.
Who Does What in a Nursing Home
Administrator;
Personal Care; Nursing; Dietician and Food Services; Social Worker; Recreation;
Rehabilitation; Housekeeping; and building Maintenance; Pharmacy; Physicians;
Other Staff Members
Mabel
8.
The Nursing Home System
How
the System Works; A Typical Day
Cyrus
Part
III: Moving In and Settling In
9.
Preparations for Moving Day
How
to Prepare Your Relative; Get to Know the Home in Advance; Equipment; Valuables;
Clothing and Laundry; Plan ahead for Moving day; Plan to Take Care of Yourself
Betty
10.
Moving Day
Stay
Calm; If Your Relative Refuses to Go; When You First Arrive
Joan
11.
Settling In
Resident
Adjustment; Changes and Differences in Behavior; Dementia and Behavior; On
Staying Healthy; Your Emotional Adjustment; The Gap in Your Life; Phases
of Adjustment; Acceptance; New Relationships
Bill
Part
IV: Being the Family Member of Someone in Care
12.
Care and Care Planning
Basic Standards of Care; How Care is Organized; Care Conferences; Charts;
Medication and Care Planning; Medication and Pain Control; Restraints; Toileting
and Incontinence; Falls; Bedsores; Roommates
Louise
13.
Communication and Problem Solving
Working the System; Communication; When Things Go Missing; Your Role; Making
Complaints; Throwing Bouquets
Alvin
(Part 1)
14.
Visiting
How
Often to Visit; Visiting Someone with Dementia; Going Out and Going Home; Ending
a Visit; Companions; A Few Words About Sex
Jane
15.
Out-of-Town Caregivers
Professional
Geriatric Care Managers
Lloyd
16.
Making a Home Better
Include
the Resident in the Change; Individual Actions; Working with Other Families; Working with the
System;
Ann
17.
Difficult Decisions and the End of Life
Living
and Dying; Talking about Death; Facing Death; Younger People and Death; After
Death; Saying Goodbye to the Home
Donald
Alvin
(Part 2)
Appendices:
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State Ombudsperson Offices
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Accessing Care in Canada
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Nursing Home Residents' Rights under U.S. Law
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Questionnaires
Resources:
Websites, Books, Organizations
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